I have had a worsening problem for over 2 years now.
I am a woman with have a problem with thinning hair and some recession primarily in the scalp temple and frontal area of my hair line. It appears in a male pattern. I don’t have any balding but do have miniaturized short hairs that no longer grow to their previous length or fullness and they are sparse. The frontal hair strands are fragile and tend to have a fly a way appearance. Some hair strands do fall out with a telogen hair and they do grow back but not to the previous length or fullness and some hairs fall forward and seem to rest on my forehead. This problem started after having a eb virus which I had a rash and took acetate fluocinide ointment for which I noticed seeemed to further aggravate the receding appearance of my hair line. So, I stopped using it long ago. I also have eye brow and leg hair that is sparse and does not grow to its previous fullness and some areas on my legs where hair no longer grows at all. I have tried many medicines and they seem to aggravate and cause my fragile hair in the front to break and have not helped. I notice that the problem is worsen during my menstrual peoriod. I have had a full work up of blood tests etc. and all labs have been returned within normal range. I had a biopsi which did not yield any definitive cause either. I have been to many derm doctors, endocrin, rheum etc. and noone is able to provide a definitive diagnosis or a treatment that will help. Please note I am primary concerned with the scalp hair loss the hair loss in the other areas I can deal with. This is a very odd problem. This has been very frustrating any help or advice would be greatly appreciated. I am ok with out a dx if I can get something that will improve the problem.
It is rare, but women can experience male pattern balding or thinning as you describe. In these women, the miniaturized pattern follows the Norwood Classification, sometimes leaving the very frontal 1/2 inch almost normal. You may be experiencing a Telogen Effluvium which is more common in woman. I am not certain about the association of EB virus causing hair loss unless there is a cross reacting antibody to EB virus which mistakenly attacks your hair follicles at the same time. You have a very interesting problem. I would like to see photos from all angles or if you can, drop by for a free consultation so that I can evaluate in detail using a magnifying video camera of your entire head. Have you tried Rogaine for women?