Central Centrifugal Cicatricial Alopecia

I am a 54 year old Africia American Female that has Central Centrifugal Cicatrical Alopecia, is there hope? and if so what can I do.

Also called “hot comb alopecia” in the past, central centrifugal cicatricial alopecia (CCCA) is a rare condition that presents with cicatricial alopecia in the central scalp. This lesion grows larger around its center and tends to destroy the hair follicles and causes permanent balding.

It was thought that this condition has to do with combing or use of oil for hair styling in African-American women. The cause of this type of hair loss is still not known and its treatment is difficult, as seen with this and other similar scarring alopecias. This condition that is usually seen in African women presents as an unusual sensation (pins and needles) on the top of the scalp followed by tenderness in those areas. There is no visible sign of inflammation in the area. Skin color may change to become fleshy and eventually hyper-pigmented (darker). Hair loss in this condition is usually permanent.