Hypohidrotic Ectodermal Dysplasia and Hair Loss

I have a condition called Hypohidrotic Ectodermal Dysplasia and it affects the hair. I was wondering if you know anything about this condition? the hair loss is affecting my confidence. I am 21 and I live in Australia. I have asked the ozed support group and NFED and they weren’t much help. So can you please email me back and if you need any more info just ask.

I know of the condition, but there’s not much that can be done to treat the thin hair associated with it. People with hypohidrotic ectodermal dysplasia often have a low number of hairs on the head and this produces a see-through appearance. This thin look can be helped with the use of concealers like Toppik or DermMatch, as this is a good, inexpensive way to produce the cover you need.

I’ve written more about these camouflaging agents in my book, Hair Loss and Replacement for Dummies (see chapter 8), and there might be more assistance you can find at the Ectodermal Dysplasia Society.