Sarcoidosis and Female Hair Loss

Female – In 1986 I was on a high dose of prednisone for sarcoidosis.The disease affected my eyes and my lungs.Within 3 weeks of taking the medication, my hair was thinning. I ended up being on the drug for a year. Needless to say all my hair fell out. Even after being off the drug, my hair never grew back. To this day I am still bald. I do believe that the sarcoidosis was started from fumes. I worked with a very strong glue and liquid rubber at work. Some of my co-workers were having nose bleeds also .I find the whole ordeal very upsetting. But I didn’t know how to prove the the fumes were the cause of my problem. Being on prednisone has been a life time nightmare for me. I kept the hair loss a secret for 14 years.I wore wigs or glued on weaves. I finally decided to tell my family in 2000. This situation has caused me much grief. I can’t date because I’m afraid that the person will reject me because of no hair. Thank for reading this.

Your hair loss maybe due to both Sarcoidosis and steroid. Sarcoidosis involves inflammation that produces tiny lumps of cells in various organs in your body. The lumps are called granulomas because they look like grains of sugar or sand. Sarcoidosis can occur in almost any part of your body, although it usually affects some organs more than others. Thus, in theory, Sarcoidosis could cause hair loss. I am not certain about fumes causing sarcoidosis, but that is clearly a distinct possibility and more research would be a good idea (not something that I can do through the site). You may want to see a dermatologist and ask for a referral to a toxicologist for better evaluation of your hair loss and possibly biopsy the scalp to rule out inflammation and disease that may cause your hair loss. Good luck and please let me know the outcome from the referral sources I discussed here.